Diagnosis
Diagnosing PNH can be difficult
The signs and symptoms of PNH are different for everyone and often similar to other diseases. That can make PNH tough to diagnose. Learn how Scott's health got worse over several years before he was finally diagnosed with PNH. View video.

Symptoms of PNH
PNH can get worse over time
PNH can get in the way of doing even the simplest things. Learn how Scott coped with his life-threatening disease as it got worse over the years, affecting the daily life that he once took for granted. View video.

Supportive care
Living with PNH can be a challenge
Being diagnosed with PNH is only the first step. Actively managing PNH is critical, and living with some treatment choices can be a trying experience. Hear about the challenges faced by Scott and his family as they sought supportive care for his PNH. View video.

Take an active role
Stay informed to help manage your PNH
PNH can affect your life and the lives of the people who care about you. But even though PNH is rare, there are things you can do to help yourself and those close to you. Find out what Scott suggests for others living with PNH. View video.

Symptoms of PNH
Left untreated, life with PNH can be difficult
The symptoms of PNH can affect your entire life, both physically and emotionally. Find out how Victor's PNH symptoms affected him. View video.

Caregivers
Staying positive as a caregiver
When you care for someone with PNH, staying positive can be difficult. Find out how Victor's wife, Stephanie, helped him manage his disease, and also how she coped—even in trying times. View video.

You are not alone
Connecting with others can help
Because it is a rare disease, it's natural to experience feelings of isolation when you are diagnosed with PNH. Talking with others who have shared the same experiences and who understand can make a difference. See how support groups helped Victor overcome feeling alone, and how he's now helping others with PNH. View video.