This site is intended for US audiences only. If you are a resident of the European Union, please click here for the EU version of our site.
Alexion respects the privacy of visitors to the PNH Patient Registry website. We will collect personally identifiable data such as your name, address, telephone number, or email address only when it is voluntarily submitted to us. This information may be used as a means to improve this site, or it might be used to provide you with information that you have requested or additional information that Alexion believes may be of interest to you. The data will not be transferred outside the company without your prior consent, but may be used within Alexion or by a company acting as an agent of Alexion for processing and mailing purposes. Alexion may also use this information within the company for performing marketing studies or for other commercial purposes for which it may receive compensation. By clicking on the "I agree" button, you consent to Alexion's use of your submitted information for these purposes.
The data collected are maintained by Alexion in an electronic database of voluntarily submitted personally identifiable information. By clicking on the "I agree" button, you consent to have your submitted information maintained in such a database and authorize Alexion and its agents to exchange such information with each other or with you over the Internet or intranet systems solely for the purposes of carrying out the services described above.
While Alexion will make every reasonable effort to protect the information collected through the PNH Patient Registry website, please be aware that there is always some risk involved when submitting data over the Internet. We cannot guarantee that our website is 100% safe from illegal tampering or "hacking." Therefore, any data transmitted over the Internet may be at risk during transmission or when stored. We track the total number of visitors to our website, the number of visitors to each page of the website, and the domain names of our visitors' Internet service providers. No personally identifiable information is gathered in this process.
If at any time you wish to stop receiving emails or other communications from us, or if you have submitted personally identifiable information through our website and would like to have that information deleted from our records, please notify us by email. Please note, however, that any personal information you have submitted that we have de-identified and aggregated for marketing or study purposes will not be deleted from our records. As a reminder to you when exchanging emails, any email that you send or receive on your employer's email system may be the property of your employer. Consequently, your employer may have the ability to review your personal information sent via email.
Our website is not intended or designed to attract children under the age of 18. If you are under the age of 18 you must not provide your personal information. We do not collect personal information from any person we actually know is a child under the age of 18.
Copyright & Intellectual Property Rights
All content of this website is protected by copyright laws. Unauthorized use of these materials may violate copyright, trademark, and other laws. You may not copy, modify, upload, download, post, transmit, republish, or distribute any of the content, including without limitation the programming code, contained in this website without Alexion's prior written permission except for your own personal, noncommercial purposes. Except as provided in the preceding sentence, nothing contained in this website shall be construed as granting a license in or other intellectual property rights under any patent, trademark, copyright or other intellectual property of Alexion or any third party.