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Terms & Conditions


The information on this website is provided as general information about the PNH Patient Registry and PNHSource.com. It is provided to you as a service of Alexion Pharmaceuticals, Inc. (“Alexion”). Alexion has made reasonable efforts to ensure that the information is complete and accurate when posted; however, Alexion makes no warranties or representations as to the completeness or accuracy of the information presented. Further, Alexion does not undertake any obligation to update any information that may change after posting.

The information contained on this site is intended for informational purposes only. It is not a substitute for actual medical care. Persons requiring diagnosis or treatment or with questions specific to a single individual are urged to contact their local healthcare provider.

Third-Party Links

Links to other websites not controlled by Alexion are provided for convenience only. By providing these links, we are not endorsing or agreeing with content contained at any of the linked sites. Furthermore, the content of the linked websites is not part of the PNH Patient Registry website. We try to choose sites that are relevant. However, with the rapidly changing nature of some sites, we cannot express any opinion on their content and cannot guarantee their quality. We have no control over the linked sites and their policies. The privacy policy presented on the PNH Patient Registry site DOES NOT APPLY to any linked sites. You should contact those sites directly for information on their privacy policies, confidentiality agreements, and data collection/distribution procedures.

Alexion will not be liable for any loss or damage resulting from the use or misuse of the information in this site or any site to which it may be linked, and all users who access the PNH Patient Registry website or linked sites agree to do so at their own risk. Neither Alexion nor any other party involved in creating, producing, or delivering the PNH Patient Registry site or any site linked from or to this site shall be liable in any manner whatsoever for any damages of any nature arising out of your access to this site or any site linked from this site, or any errors or omissions in their content.

Please note that linked sites may use “cookies,” which are small data files that a server gives to your browser when you access a website in order to track the pages you visit on the website. Alexion cannot control the use of cookies by these linked sites. We also want you to know that when you link from the PNH Patient Registry website to another website, that site may have the ability to recognize that you have visited the PNH Patient Registry website. If you do not want any other websites to know that you have been on this website, we recommend that you do not use the links provided in our site.