We are here for you

  • Welcome to PNHsource!

    Whether you or a loved one is living with PNH, we’re here for you. Explore our site for support and resources to help you on your patient journey, every step of the way.

  • Take a deep dive into PNH

    Listen to our podcast that features in-depth conversations with people in the PNH community.

    Listen now
  • Learn about personalized PNH support

    Watch a video of Rhonda, a PEM (Patient Education Manager)

    Meet more PEMs
  • Join us for the next PNH event!

    Attend a free webinar or in-person event to learn from medical experts in PNH, hear from people living with or caring for someone with PNH, and connect with others in the community.

    Register for an event

Join OneSource™, a complimentary, personalized support program for people living with PNH and their caregivers. The program offers disease information, community resources, and ongoing engagement. Call to sign up or learn more.

Learn more about OneSource

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Meet Rhonda, a Patient Education Manager

Patient education managers (PEMs) are members of  the OneSource™ team you can connect with in your area. In this video, Rhonda talks about the many services and resources your PEM can provide.

Learn more about PEMS

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