Support at last

The road to a PNH diagnosis can be a long and sometimes emotional one. The good news is that you can easily find the information, resources, and support to help you move forward.

Let’s start with the basics

What is PNH?

PNH is a rare disease of the blood.1 We’ll explain all the details.

Understanding PNH

Living with PNH

Here you’ll find supportive resources for people living with PNH and their caregivers.

Support resources

Attend a PNH event near you

Meet and connect with PNH patients and their loved ones.

Event schedule

Connect with a OneSource Case Manager today

OneSource is here to help. OneSource is a personalized program that provides disease information, community resources, and ongoing support for patients and their caregivers. OneSource is staffed by Alexion Case Managers, all of whom are registered nurses with extensive clinical experience.

Contact OneSource

Nurse with headset