Real-life PNH Stories

Even though everyone’s experience is different, you can gain valuable insights from seeing how others are living and coping with PNH.

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Follow PNH Perspectives on Spotify for real-life PNH stories from patients, healthcare providers, caregivers, and advocates.

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Patient Journeys

Even though everyone’s experience is different, you can gain valuable insights from seeing how others are living and coping with PNH.

Batina’s journey

Watch Batina’s patient journey, from symptoms to diagnosis to living more confidently with PNH.

Diagnosis was a hard journey

Asking for help was a turning point

OneSource™ support was a huge help


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