Helping you help your loved one
As a caregiver to someone with PNH, you can be a great source of encouragement and support. It's important for you to learn as much as you can about PNH and be ready to offer help, empathy, and understanding as needed. The following are some specific steps you can take to help your loved one.
How you can help
Encourage your loved one to:
- Attend PNH events. Also be sure to check events that are focused on caregivers
- Connect with others living with PNH
- Take advantage of complimentary resources like OneSource™ and others found on this site
- See the doctor regularly
- Track symptoms and lab results
- Prepare for doctor visits with questions and concerns