Community and Support
Support services and groups
We want to help people living with PNH and their caregivers get the support they need. Check out these services and resources that may help you connect with others, learn more about PNH, and get answers to your questions.
Connect with the community
People living with PNH and other rare diseases can have active lives. Find an upcoming event in your area to meet other pople who understand what you're going through and want to sharein their journey.
OneSource®
Join OneSource™, a complimentary, personalized support program for people living with PNH and their caregivers. The program offers disease information, community resources, and ongoing engagement. Call to sign up or learn more.
Advocacy groups
Aplastic Anemia (AA) and MDS International Foundation (MDSIF)
These groups offer assistance, advocacy, and support for patients living with multiple diseases, including PNH.
National Organization for Rare Disorders (NORD)
This organization offers a variety of support and services, including medication assistance, hosting meetings, and spreading awareness about rare diseases.