Resources and tools for PNH patients

We understand that a diagnosis of PNH can be overwhelming. It can be hard to know what questions you should ask your doctor. That’s why we’ve put together a one-page checklist of topics to discuss at your next visit.

Download our Doctor Discussion guide

Additional Tools & Resources
to help you manage PNH

Patient speaking/checklist

Symptoms/LDH Tracker Tool

Download PDF
Patient sleeping

Measure the effect fatigue has on your day-to-day?

Download PDF

Connect with the

People living with PNH and other rare diseases can have active lives. Find an upcoming event in your area to meet other people who understand what you’re going through and want to share in their journey.

Upcoming events

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