Resources and tools for PNH patients
We understand that a diagnosis of PNH can be overwhelming. It can be hard to know what questions you should ask your doctor. That’s why we’ve put together a one-page checklist of topics to discuss at your next visit.
Additional Tools & Resources
to help you manage PNH
Symptoms/LDH Tracker ToolDownload PDF
Measure the effect fatigue has on your
Connect with the
People living with PNH and other rare diseases can have active lives. Find an upcoming event in your area to meet other people who understand what you’re going through and want to share in their journey.
Get updates on PNH sent right to your inbox.
Sign up to receive the latest disease education information in your inbox. We’ll be in touch with news and resources designed to support the PNH community.