Tools to help you manage your PNH
You can get more out of your healthcare visits by being prepared. Download our Doctor Discussion guide for topics to discuss and other helpful information.
Additional resources to help you manage your PNH
Helpful guides to living with PNH
We’ve created a series of Guides that offer information, resources, and tips to help you navigate life with PNH. Download them all!
5 Ways to Get the Most Out of Summer
Make the most of the summer while still managing your PNH. This Guide includes 5 fun and easy activities you can enjoy with family, friends, or on your own!
More helpful Guides are coming in the future! Check back here regularly to see what’s new, and get updates on our resources by following us on Facebook and Instagram.