Tools to help you manage your PNH
Additional resources to help you manage your PNH
Helpful guides to living with PNH
We’ve created a series of Guides that offer information, resources, and tips to help you navigate life with PNH.
Order your Caregiver’s Guide to PNH
This 4-chapter book provides useful information for caregivers of people living with PNH. It includes:
- Navigating daily life with PNH
- Tips for getting organized
- Dealing with caregiver stress and ways to avoid burnout
- Helpful resources
Doctor Discussion Guide
You can get more out of your healthcare visits by being prepared. Download our Doctor Discussion guide for topics to discuss and other helpful information.
5 Ways to Get the Most Out of Summer
Make the most of the summer while still managing your PNH. This Guide includes 5 fun and easy activities you can enjoy with family, friends, or on your own!