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PNH Registry

PNH Registry


More than 5000 patients with PNH enrolled in the PNH Registry


The PNH Registry is an international, observational, and noninterventional study collecting safety, effectiveness, and QoL data from patients with a confirmed diagnosis of PNH or a detectable PNH clone.

The PNH Registry:

Contributes to management objectives, practice patterns, and best practices.

  • An invaluable opportunity to increase understanding of the natural history of PNH

Supports scientific collaboration in the PNH community.

  • Offers the international community greater insight into an uncommon disease with potentially devastating consequences

Enroll your patients in the PNH Registry today.

Please contact the PNH Registry hotline:

Telephone: 1.215.616.3558


Do you have any questions about PNH? Contact an Alexion Nurse Case Manager for more information.

Contact a nurse case manager from OneSource™ who can provide information and useful tools to help you care for your patient with PNH.

There is a community of experts who can help you in caring for your patient with PNH. Find the right person to assist you in providing your patients with PNH with the best care possible.